Day 2 – Even when the day went off the rails

Today, I have felt unfocused and frustrated. Frustrated that my mind feels foggy and so does my brain. Part of my MS journey is realizing that after a fun night of music, hockey and drinking. I need to then give myself the downtime… or the Grace. It’s hard when I still have things I need to do.

I did accomplish things today. Contacting doctors, organizing my MS Walk outfit and Ashlynn’s and Scott’s. Plus, then organizing and sending out info to my team. For a non-MS brain, that probably is an hour, maybe 2 of tasking. Me… all day! Like 6 hours. Oy.

I did, however, just finish my pilates. I did the same video as yesterday. I’m proud of myself. In all the mismatching my brain is today, I still took the time to stretch and use my body. There are muscles there that are sore and tender from non-use… it’s a good feeling, waking them up.



Tonight, we have trivia with good friends. I’m excited, even if my brain and body are rebelling.



My eyes are definitely telling the story of being tired and maybe pushing past my limits. Finding balance is hard, ya’all. Especially when the simple things take hours for my brain to handle.

So, for now, I’ll focus on things I can and find the joy and beauty around me. Peace and love my friends 🧡 and enjoy your ☕️cups.

Day 1

It has been over a year since I’ve pulled out my yoga mat. Today, I changed that.



As I’ve mentioned, my fatigue has crippled any energy for most of the past year. Which of course has meant no energy for anything, let alone yoga or any exercising.

On top of the fatigue, I had gained 20 pounds quite rapidly from mid-January this year to mid-February. I had no changes in anything; diet, exercise, and medications had not changed. I am now at the heaviest weight I have ever been. Now here it is almost May, the fatigue is waining, which means I’m doing more things but the weight continues to climb.

After several doctors’ visits and nothing seemingly wrong. Between endocrinologist, primary care, hormone specialists, gastrointestinal and neurologists, there is nothing that would cause the sudden weight gain, I am realizing how important it is for me to move my body. Even if it’s just stretching. Today, I did an 18 mintue beginning pilates🧘‍♀️ video for the lower body. Even beginner videos I still find myself needing to modify poses as my body is so weak. But, I still did it!

Coming up this week, I’m doing the Denver MS Walk 🧡. 

So, I’m hoping that I’ll keep up stretching and moving my body so I can yet again feel semi comfortable in my own skin.



Here’s to a healthy version of Rini… enjoy your cups today. 💧☕️

April 2

A teaser



I want to give today the full run down, but it’s been a long day, and it’s almost midnight.  So, instead, a teaser of things I’ll write about tomorrow.

And with that… I hope your day was filled with many happy cups. ☕️

April 1

A day of errands… partly because I wanted to shop and partly because we forgot some items when we went grocery shopping on Saturday.



I did some craft supply shopping for our Rex Manning Day party and then some spring decor shopping before heading to the grocery store.

I spent way too much time picking out my bunches of flowers, but I love the final outcome. Making flower arrangements is one of my favorite things.



I totally forgot to pick up prescriptions while I was at the store, so I ended up going back a few hours later. Between Ashlynn and I, we have forgotten to pick up prescriptions a good dozen times in the past week. It was even on my grocery list today, and I still forgot. Oy. Store count today: 4 – 1 craft store, 1 decor store and 2 trips to the grocery store.

I’m proud of myself. I also managed to arrange flowers, take down St. Patrick’s Day decor and pack away, start putting up spring decor, play with the pup, take a shower, Iron (I have had a huge pile of things needing to be ironed… 8 placemats, 16 napkins, 2 table runners, 1 table cloth, and 2 pairs of pants). Also, I gave hugs to a friend and played Hogwarts Legacy with Scott. It was a very full day, besides aching in my legs and feet. I’m doing okay… tired but okay.

On deck for tomorrow is finish spring decorating and maybe do some cleaning. Otherwise, rest. Thinking of which I should try and sleep.

Happy coffee cups, my friends ☕️